Home 30 days

I ve been home from My Hospital experience now for 30 days.   It has not been what I expected.
It is wonderful to be here at home, to see my kids.  they stop over often.   It is a comfort.

I still have a fistula, the opening from my stomach to the outside of my chest.  A speical apparatus overs the wholes, but it still drains.. than about every 3 or 4th days it breaks open and a nursing service must then come and fix it to stops it from leaking all over the place.  This is very tryiung. and it is because of this, that:

Since my 4th day home, the doctors has made me NPO. Nothing my month.  So although for the first few days I was able to enjoy food, my mothers cooking, that ended quickly.  I have not eaten all month.
Throughout this month i have weighed 103 to 105 pounds.  However, a turn for the worse over the weekend and as of yesterday; 99.2 pounds.  Very much scary.  99 pounds.
'
I am on tube feedings at night and hook myself up at 4:00 here in bed and the tube food gets pumped in for trhe next 16 hours..so, a abit boring lying in bed for 16 hours... but my son, just this week but a router here in my parents computer and I now have wi-fi  Thanks Adam..  

'I am very weak and can't seem to sit in a chair for more than an hour.

and I can not remember my password for my yahoo email account.  so for those who have written me via yahoo, thank you, burt I can't acess it now, hence why you have not heard from me. It has been a very frustrating time this month....

I will hope September will be better...


I still hope to go back to my apartment in early september.just for the change .  Hey is might be just wht I need.  ;-)   I do hope for a better month ahead.  Heck ... it just can;'t ny worse than Augusut, can it?

take care....   - Scott

Home for 3+ weeks

First I want to apologize, I have been somewhat remiss in writing since I have been home from Pittsburgh.
But it have found it hard to sit at the computer for any length of time....

Let me fill you in on the healing process now that I am home...

So it has been about 3+ weeks since coming home from Pittsburgh via a 4.5 hour ambulance ride to Rochester...it was nice to be home.

I spend 96 days in the hospital in Pittsburgh and was looking forward to eating Mom's cooking and gettting heavier.  I weighed 132 pounds when I was admitted for the surgery in April.  I weigh 103 NOW.  I am reallly skin and bones.  Lost most of what Hair i had as well and don't look a lot like me....   but time will make that better...

I have two holes iin my chest.  I have a colonoscopy and a fistula.  The fistula is an aberration that occurs from time to time with this type of surgery and I won.  I have one.  It goes from the my half a stomach to the surface of my chest and must heal itself from the inside out.

as I was saying.... the fistula was healing but upon arrival at home it doubled in size and I was immediately plaed on no food.  NPO.  Nothing but jello.  So i have nothing to eat by mouth since a few days after arriving home and that was 3 weeks ago.  I AM hungry!!

Plus my applicances that are now part of me that coffect fluids, from my body constsantly break...every day, so I wake up in the middle of the night covered in excretment...or really any time.  Like this morning, it once again broke open and I am waiting for the home health nurse to arrive to repair it.... not pleasant!  It is tiring and not fun.

so you could say I am healing at home... but it is  a slow process.  I reallly want to eat...

and the energy level i have is close to non-exisistant. The food I get by tube into my body barely covers what I expend each day so I am really quite weak.... and tht is not fun either...

so this is the news from home... 3+ weeks into being home..  But it IS nice to be home instead of the hospital and it IS nice to have family around,,,but I AM frustrated and just wish to have my strength back, wish to be have this fistula closed so I can eat once again and wish to start gaining weight once again...

maybe tomorrow....or next week....   hummmm   Hope so.

so now this is Scott....