Home 30 days

I ve been home from My Hospital experience now for 30 days.   It has not been what I expected.
It is wonderful to be here at home, to see my kids.  they stop over often.   It is a comfort.

I still have a fistula, the opening from my stomach to the outside of my chest.  A speical apparatus overs the wholes, but it still drains.. than about every 3 or 4th days it breaks open and a nursing service must then come and fix it to stops it from leaking all over the place.  This is very tryiung. and it is because of this, that:

Since my 4th day home, the doctors has made me NPO. Nothing my month.  So although for the first few days I was able to enjoy food, my mothers cooking, that ended quickly.  I have not eaten all month.
Throughout this month i have weighed 103 to 105 pounds.  However, a turn for the worse over the weekend and as of yesterday; 99.2 pounds.  Very much scary.  99 pounds.
'
I am on tube feedings at night and hook myself up at 4:00 here in bed and the tube food gets pumped in for trhe next 16 hours..so, a abit boring lying in bed for 16 hours... but my son, just this week but a router here in my parents computer and I now have wi-fi  Thanks Adam..  

'I am very weak and can't seem to sit in a chair for more than an hour.

and I can not remember my password for my yahoo email account.  so for those who have written me via yahoo, thank you, burt I can't acess it now, hence why you have not heard from me. It has been a very frustrating time this month....

I will hope September will be better...


I still hope to go back to my apartment in early september.just for the change .  Hey is might be just wht I need.  ;-)   I do hope for a better month ahead.  Heck ... it just can;'t ny worse than Augusut, can it?

take care....   - Scott